5/24/05
to add additional sites. Unfortunately, our ability to proper group them
has become a problem with needing more pages. Pleas bear with us as
we attempt to organize them the best we can. As always keep a look out
for foreign sites because they often give a different view point than we
get in the U.S.
illness from ADD to weight loss.
The is a site for The Invisible Disabilities Advocate located at
www.InvisibleDisabilities.com/. One of the most frustrating often-made
comments is: "But you look so good." How many times have we all
heard that one? The Advocate helps people understand chronic illness
and chronic pain.
A good overview is at www.cfidsinsights.com. This covers a very broad
concept of CFS and should be reviewed.
Obviously, many of these sites have similar information. You should
scan the "familiar" parts because they often have a different slant and
look for things to learn. The www.cfidsreport.com/ site has many of these
same concerns, but it is definitely a site you should look at.
Many doctors have set up websites that often present their own ideas
which can be both good and bad, but require a look at. Doctor Kent
Holtorf established a website at www.chronicfatigue.about.com/. This is
rater a good site, but it is located on a free hosting site that runs ads.
There are many commercial sites which are selling you their product. We
shouldn't ignore them all because some contain some good general
information. Molo-Cure Research, Inc. at www.molocure.com/ is a good
example.
Delphi Forums at www.delphiforms.com/ covers a host of chat rooms
and forums. Sometimes it just helps to know that you are no alone and
many people are suffering from the same symptoms. It also helps to get
some things "said" to get it off your chest. Chat rooms and forums serve
a good function, but please follow the rules set out on each site by
watching your language and not sell anything.
The U.K. has done a lot of work on ME (CFS), including some heated
discussions. There are 3 sites worth looking into:
megroup.webspace.fish.co.uk/ The site dspace.dial.pipex.com/ links to
several sites around the world. Support ME is an online resource for all
ME/CFIDS sufferers located at www.support.me.co.uk.index/ The tell us
that the UK has recently amended their definition of ME/CFS which is not
well liked by people with CFS.
The Satori-5 network of Scotland located at www.satori-5.co.uk/ It
is full of information and general resource website for Myalgic
Encaphalomyelitis (ME), Multiple Chemical Sensitivity (MCS), Hazardous
Radiations Sickness (HRS), and Alternative Health, including the
webmasters own harrowing experiences with a combination of these
illnesses. The webmaster is not only a good guy, but he works hard to
keep his site as up to date as possible.
Friends International FMS, CFS, Chronic Pain Support is a support group
and forum located at pub.123.ezboard.com/bsunshine.
HEALTH-NEXUS is a health information site at www.health-nexus.com/.
You can go to their home from here for general health information.
CHRONIC FATIGUE SYNDROME SOLUTIONS is located at
www.chronicfatiguesolution.com/. It is a little heavy on medical language
and the physiological aspect, but worth a look.
Another DiSABILITY info site is located at mayapple.ms11.net/
A lot of people like chat rooms. Sometimes you do get some good
information from someone you has been through it. At the very least, you
have a chance to chat with people who are going through the same thing
you are. A good UK site (CFS/ME Chat) is located at
sirius.secureforum.com. I think it helps to chat with people outside of the
U.S. for their views on this "thing".
A feel good site is www.reaching-out.info.
A site that lists numerous other CFS/ME sites including this one is at
www.internet-health-directory.com.
A site for ENVIRONMENTAL ILLNESS RESOURCE is located at
www.ei-resource.org.
Another U.K., The ME Association can be found at www.meassociation.org.uk/.
The web is full of CFS/ME sites. The following is another links site at
www.ourlittleplace.com/mcslinks.
We found a site in England where a woman wrote a leaflet called "A Little Surgery". She
has now expanded her site to make it worth looking at and can be found at
web.ukonline.co.uk/ruth.livingstone.
Canada has recently changed the definition of ME/CFS, and the fastest way to
see it is to go to megroup.webspace.fish.co.uk/.
Reaching out is a good website located at www.reaching-out.info/. They define their
site as follows: Reaching Out is a special, safe place that is run by survivor's and offers
free support groups, 24 hour chat, survivor's stories, latest research and treatments,
advocacy and resources for both CFS and FM. The also offer a free monthly email
newsletter that is very popular.
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